Supplementary data for manuscript: Quality of Life in children and young people with Congenital Adrenal Hyperplasia – UK nationwide multicentre assessment
Version 2 2024-12-04, 13:34
Version 1 2023-06-25, 16:21
dataset
posted on 2024-12-04, 13:34 authored by Neil LawrenceNeil Lawrence, Irina-Alexandra Bacila, Jeremy DawsonJeremy Dawson, Sundus Mahdi, Sabah Alvi, Tim D. Cheetham, Elizabeth C Crowne, Urmi Das, Mehul DattaniMehul Dattani, Justin H Davies, Evelien Gevers, Ruth Krone, Leena Patel, Tabitha Randell, Fiona J Ryan, Brian Keevil, S Faisal Ahmed, Nils KroneNils Krone
Impaired Quality of Life (QoL) in Congenital Adrenal Hyperplasia (CAH) has been demonstrated in adults, but research in children has yielded variable results. We investigated the impact of CAH on QoL of children and adolescents alongside clinical health outcomes (biometric and biochemical profiles).
Clinical Trials Registration Number: SCH/15/088. Approved by Yorkshire & The Humber Sheffield Research Ethics Committee (15/YH/0537)
Funding
National Institute of Health Research rare disease translational research collaboration (NIHR RD TRC), the Chief Scientist Office of Scotland and Diurnal Ltd.
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