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File A - Interview topic guides.docx (129.58 kB)
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File B - Topic guide for cognitive debriefing.docx (33.7 kB)
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File C - Copy of the psychometric survey.docx (29.01 kB)
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File D - Psychometric results.xlsx (31.59 kB)
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File E - Stage 1 theoretical mapping of item sets onto underlying qualitative themes.docx (21.2 kB)
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File F - Cognitive debriefing results and item tracking matrix.xlsx (16.41 kB)
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File G - DMD QoL 27 item response distributions.docx (17.68 kB)
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File H - Stage 3 item tracking matrix.xlsx (14.46 kB)
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File I – Stage 1 qualitative higher-order themes and example quotes.docx (15.6 kB)
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Supplementary files for 'A new quality of life questionnaire for use in Duchenne muscular dystrophy: the DMD-QoL'
Version 2 2021-01-13, 17:15
Version 1 2020-09-15, 18:42
dataset
posted on 2021-01-13, 17:15 authored by Philip PowellPhilip Powell, Jill CarltonJill Carlton, Donna RowenDonna Rowen, John BrazierSupplementary files to support a manuscript on the development of a new quality of life questionnaire in DMD: the DMD-QoL.
The research is part of the Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy project and is funded as part of project HERCULES led by Duchenne UK.
A protocol for the work is available online: Powell et al. (2019), http://dx.doi.org/10.1136/bmjopen-2018-023685
The research received ethical approval from the UK National Health Service (NHS REC reference: 18/SW/0055).
Funding
project HERCULES (Duchenne UK)
History
Ethics
- The project has ethical approval and have included the number in the description field
Policy
- The data complies with the institution and funders' policies on access and sharing
Sharing and access restrictions
- The data can be shared openly
Data description
- The file formats are open or commonly used
Methodology, headings and units
- Headings and units are explained in the files
