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2023-10-17 CAH National Service Evaluation Supplementary Material.docx (976.04 kB)
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2023-01-13 ADOLESCENT 15-19 YEARS VERSION Patient and carer survey about CAH services.pdf (202.71 kB)
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2023-01-13 ADULT Patient and carer survey about CAH services.pdf (213.88 kB)
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2023-01-13 CHILD 6-9 YEARS VERSION Patient and carer survey about CAH services.pdf (138.53 kB)
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2023-01-13 CHILD 10-14 YEARS VERSION Patient and carer survey about CAH services.pdf (179.21 kB)
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2023-10-17 CAH National Service Evaluation Supplementary Material.pdf (638.67 kB)
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Supplementary data for: National service evaluation of the quality of care for children and young people with congenital adrenal hyperplasia in the United Kingdom: survey responses from patients and clinicians
journal contribution
posted on 2023-10-17, 13:34 authored by Neil LawrenceNeil Lawrence, Irina-Alexandra Bacila, Gary CollinsGary Collins, Jeremy DawsonJeremy Dawson, Zi-Qiang LangZi-Qiang Lang, Xiaochen JiXiaochen Ji, S. Faisal Ahmed, Sabah Alvi, Louise E Bath, Tim Cheetham, Liz Crowne, Justin H Davies, Mehul DattaniMehul Dattani, Evelien Gevers, Ruth Krone, Leena Patel, Ajay Thankamony, Tabitha Randell, Fiona RyanFiona Ryan, sue elford, sallyann blackett, Nils KroneNils Krone, Jo BlairA national service evaluation into the satisfaction of services provided for those with Congenital Adrenal Hyperplasia. Includes supplementary material (.pdf and .docx) and blank questionnaires.
Funding
History
Ethics
- There is no personal data or any that requires ethical approval
Policy
- The data complies with the institution and funders' policies on access and sharing
Sharing and access restrictions
- The data can be shared openly
Data description
- The file formats are open or commonly used
Methodology, headings and units
- Headings and units are explained in the files
